Saturday, January 30, 2016

Miracles, Angel's, and knowing this is just the beginning....

Tonight I find myself, once again, in a quiet room, worship music play while my sweet girl sleeps, and with every deep breath, and quietness in the room, the presence of the Lord remains so sweet and so strong, despite the craziness of the last few days.....

It's hard to know where to even begin, but I guess the best place would be where I left off...

After the bone marrow biopsy on day 2, the Lord continued to show up and place amazing things in front of our eyes....After 2 hours of sleep on night 1, I decided I would go home and sleep since I had to teach on Thursday....and of course when I got home the first thing I did was vacuum and mop the floors....sure, I should have been sleeping, but I just couldn't....I am sure it's partially a control thing, and just being really transparent here, but even just knowing my floors were clean is like an immediate sense of calmness and by the simple act of cleaning a floor, that the entire house appears different..... I think we do this some in our own life....try to make things look better for an immediate feeling of peace, and sometimes I know this is a challenge for me to stay in balance...And I fully admit to my floor obsession, but after the last few days we had, it was just something I needed to do to feel better....so even though I had to work the next day, the floors were clean and there was some sense of peace despite the lack of sleep and at 5:00AM alarm clock....

Day 3: PORT DAY! So thankful that my amazing husband was able to be with Laney while I taught my students.....My husband, he sure is a special one...while Alayna was in the OR he met another family with a daughter our age and a much different diagnosis....We have realized over the last few days how blessed we are to have the diagnosis of ALL and particularly type B-cell....we have hope and trust in Alayna's beautiful and complete healing, but others do not share in this hope or even have the same prognosis....It seems so crazy, and I said it in my last blog, but we are truly honored to be chosen for this path, and believe completely that is a blessing to have ALL because others do not have the hope we possess

Job 11:18New Living Translation (NLT
You will be protected and will rest in safety.
Having hope will give you courage.

Some people have asked why I am still trying to work, and the answer is pretty simple, because I have to...it will set us up to have income during my maternity leave and I love teaching, but being away from my baby during her port surgery was one of the hardest things I have ever done in my life....Thank the Lord for FaceTime...It has been such a lifesaver for us, just to be able to connect with family while in the hospital and Alayna always wants to call or "FaceTime" people....
FaceTime before surgery
As soon as I got done teaching, I immediately rushed to the hospital....I couldn't have walked in at a better time, because of prayer team from Action was there praying in Alayna's room....and they also got to pray with the family Ron met in the waiting room....there was such a peace in her room and just a sweet spirit....we had the most amazing worship time and prayer time while she slept so peacefully after her port placement....they told us that she was the best 2 year old patient they had ever had and they also thankfully already accessed her port so they wouldn't have to do it when she was so sore....The Lord keeps confirming her complete healing and it's so exciting to see that already happening...while in surgery she had a Lumbar Puncture and chemo placed in her spine to prevent the ALL from crossing into the blood brain barrier...
Sweet Angel sleep while we worshipped
After she woke up from surgery, things got a little rough.....she got very nauseated, started throwing up and spiked a fever up to 103....it was scary and not very fun because I knew she was absolutely miserable....they had to draw blood cultures and start an antibiotic.....Poor thing was just miserable....luckily after all the stress and things had calmed down, my sweet friends Becky and Kelsey (all the way from Bradenton!) both came to visit...they were so helpful in getting her cleaned up and her hair washed (thankfully Kelsey went to hair school and Becky can make a mean hospital bed).....it was so nice for Mama, as well, just to feel encouraged and loved on!




Day 4: Laney was pretty sore after surgery....we had a pretty good night after surgery, but I knew this would be the day we started chemo....as we prepared to start our first IV drug....I was super nervous...to think of chemo running through my sweet girls blood was just a scary thought...thankfully my sweet friend Angeline came to sit with me on Friday and she even brought me Starbucks :) Angeline was my very first boss when I became a nurse but over the years our relationship has become definitely more like a sisterhood. She is an incredible prayer warrior and always says what I need to hear even when k don't want to hear it sometimes and just being around her brings this sense of comfort to our whole family. Everyone loves their Angel!!! Friday the VanHovens also spent time with us and thankfully I am resting in sweet sleep because sweet Kelly found me a solution to a very uncomfortable bed, another answer to prayer..
Angel Time...and look at Alayn's face, precious

In all of this, I have had some people give me lots of their opinions and different options....and if I let it, it could upset me, but there's not doubt in my mind that the Lord lead us to the right doctor...who is simply just amazing...and the right treatment plan.....Sometimes we look to things to blame things on and say things are caused by this or that...and to be honest, I don't need something to blame right now....Satan would want to make me think this was our fault, or something we did, or that we caused it because of the way we practice medicine in our own life...the list goes on and on...but that's exactly what he wants us to do....to feel guilty....and I can't choose to accept that negativity...I choose to believe that we were chose for this as a way to share the love and hope of Christ...and I have been blown away by how God truly has ordained every step that has lead us to this point, and I will continue to choose life in our situation....

That day we were also hoping to get results back on the CSF fluids, and the Lord is so faithful because I am happy to announce there is NO LEUKEMIA IN HER CSF FLUID!!!!

This was just the first miracle in a long string of miracle....Laney definitely didn't want to eat a lot, but we were able to go to treasure box for our town after our procedures and we also received Chemo Duck and our Beads of Courage....(Chemo Duck is a super soft duck that goes with you on your journey and as you bring him in, he gets stamps, and eventually you get to turn in the stamps for something awesome....Bands of Courage is a program to reward cancer kids by giving them a bead for everytime they reach a milestone or go through something hard...it was so so cool! Friday night end up being crazy as well because my amazing Mama came down from TN to help us...she's already gone through all my kiddos clothes and taken care of a sick Addyson, so I am so blessed she is here...
Grandma is here!!!
Cancer Duck

BEADS!!!

Of course after Addy saw her Friday, they had to match

I know we are now done and up to Day 5, but that one is going to have to come tomorrow because this Mama is tired and also to tired to proof read so I apologize.....but, it truly has been amazing to see what the Lord is doing...my awesome Birmingham bestie, Tiffany Gray had been so amazing to just be someone I can vent to and talk to and she has also been so great and set up a go fund me.  We have heard amazing stories even just through that although I haven't had time to even look at the posts on there either. We have been so overwhelmed by the prayers and support that are encompassing us.....we received great news today about multiple showings at our house......but it still hasn't sold....but also are starting to see huge answers finiancially and believe the Lord will completely provide for our bills due in the next few days so check out the Go-Fund Me page when you get a free minute.....

““But now take another look. I’m going to give this city a thorough renovation, working a true healing inside and out. I’m going to show them life whole, life brimming with blessings. I’ll restore everything that was lost to Judah and Jerusalem. I’ll build everything back as good as new. I’ll scrub them clean from the dirt they’ve done against me. I’ll forgive everything they’ve done wrong, forgive all their rebellions. And Jerusalem will be a center of joy and praise and glory for all the countries on earth. They’ll get reports on all the good I’m doing for her. They’ll be in awe of the blessings I am pouring on her.”
Jeremiah 33:6-9 MSG
http://bible.com/97/jer.33.6-9.msg

Please keep praying for the following
1: OUR HOUSE HAS TO SELL
2. Please pray Addyson gets better...she has flu like symptoms and just hasn't been herself and we need prayer....
3. For Alayna...chemo slows down the digestive track and she need to go potty so she won't get an obstruction....she doesn't like medicine anymore so we literally have to hold her down to give one of her meds....so she needs to go potty for sure and we need to find a way to get her to like her Meds...and for her little heart once again......
4. Continued pray for our finances...believing and knowing the Lord is providing that!! 

MORE INFORMATION TOMORROW!!!
So blessed that we were chosen for this and just ready for the chance to see God show up and Show off and for our sweet girls! Keep following our journey!!!!



Jeremiah 31:12New Living Translation (NLT)
                                       They will be radiant because of the Lord’s good gifts—
the abundant crops of grain, new wine, and olive oil and the healthy flocks and herds.
Their life will be like a watered garden,
and all their sorrows will be gone.
They will come home and sing songs of joy on the heights of Jerusalem

5 comments:

  1. Probiotics will help her. Also, www.mykidhascancer.com Prayers!

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    1. we aren't allowed to do probiotics because it's a bacteria and she is immunocompromised....

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  2. This comment has been removed by the author.

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  3. I wrote on yesterday's blog. I want you to know I will continue to pray for your family. You're an inspiration and God is using you and your family for great things. God bless you.

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  4. Prayers for your family through these trials!!!

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